tag:blogger.com,1999:blog-7121366373034963667.post371140935475100399..comments2023-12-21T07:16:44.979+00:00Comments on The Myasthenia Kid .....: Thank YouThe Myasthenia Kidhttp://www.blogger.com/profile/11584534247370646805noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7121366373034963667.post-12772604126619828372011-07-04T12:26:28.602+01:002011-07-04T12:26:28.602+01:00Hilary,
Thats spooky!
RachHilary,<br /><br />Thats spooky!<br /><br />RachThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-76366308645515880862011-07-04T12:25:57.052+01:002011-07-04T12:25:57.052+01:00Thanks for all your lovely comments. I am ok just ...Thanks for all your lovely comments. I am ok just very very tired. I am trying to limit my computer time as its causing ptosis. Its like cutting off my right arm having to not use the laptop!<br /><br />Avoiding the heat, drinking gallons and trying to find positions to sit and lie in that do not cause me pain. Its a tough one!<br /><br />Thanks again<br />RachThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-37358680103550342362011-07-02T20:33:19.401+01:002011-07-02T20:33:19.401+01:00glad you found a way to take the tablets. sometim...glad you found a way to take the tablets. sometimes the obvious is staring you in the face (different dosage) and you cant see it, happens to me so many times!!!! blame the brain fog.<br /><br />sorry your having difficulty breathing, me too. its such a horrible thing to happen. the consultant that i see thinks its a pots and ehlers thing. sometimes to do with the lungs being over used, he told me mine could be like an old balloon! nice thought.<br /><br />take care. xemhttps://www.blogger.com/profile/14196652412958890367noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-23692592353747955032011-07-02T13:33:54.160+01:002011-07-02T13:33:54.160+01:00Hi friend!!! wish I could stop by and drink tea wi...Hi friend!!! wish I could stop by and drink tea with you and pet the doggies! xoxoxoxoxoxClovenoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-7288801269678573932011-07-02T10:48:53.417+01:002011-07-02T10:48:53.417+01:00Hi Rachel .. you do have a tough time .. and I so ...Hi Rachel .. you do have a tough time .. and I so feel for you - I can't really say much .. one gets into 'grit' mode and neither of us need that .. you've enough to deal with.<br /><br />So happy times, be at peace, have some periods of ease .. with thoughts and a hug or two .. Hilary<br /><br />PS you won't believe what the word verification is ... "coping"?!Hilary Melton-Butcherhttps://www.blogger.com/profile/17596532480645510678noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-59810639543520182272011-07-02T04:15:00.418+01:002011-07-02T04:15:00.418+01:00I'm glad you bit the bullet! It's too bad...I'm glad you bit the bullet! It's too bad your stomach gives you such trouble when you take the Mestinon. I don't think any of us like to take medication, but we really don't have much choice. It's the only way to get through the day sometimes! Your symptoms are classic MG, I hope for your sake they finally give you an official diagnosis!! I can only imagine how frustrating the whole thing is...Rachel https://www.blogger.com/profile/14572451529799829878noreply@blogger.com