tag:blogger.com,1999:blog-7121366373034963667.post8339718395086150906..comments2023-12-21T07:16:44.979+00:00Comments on The Myasthenia Kid .....: I wish .......an updateThe Myasthenia Kidhttp://www.blogger.com/profile/11584534247370646805noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7121366373034963667.post-77122837326371204532011-06-08T16:53:58.065+01:002011-06-08T16:53:58.065+01:00Hi Hilary and Ellie,
Yep I do need to get on top ...Hi Hilary and Ellie,<br /><br />Yep I do need to get on top of the medication side of things and not wait for it to progress to the point where I can't cope.<br /><br />Some of the problem is I struggle to eat before 3pm due to gastroparesis, take today for an example dry heaving until gone 2pm. A lot of my tablets have to be taken with food so its a battle. <br /><br />Then I feel like I am too dependent on them and that I should be able to cope without them. The last few weeks have shown me its not the case.<br /><br />So I will try to manage things better.<br /><br />Rach xxThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-29256188261539842292011-06-08T15:05:06.125+01:002011-06-08T15:05:06.125+01:00Hi Rachel .. Ellie seems to have picked the main p...Hi Rachel .. Ellie seems to have picked the main point - take your medication as you need it.<br /><br />I have a friend who suffers from depression and occasionally she tries to wean herself off it - it's a disaster .. she needs her pills.<br /><br />So look after yourself and I do hope you can get some relief .. glad the TENS machine is helping .. cheers HilaryHilary Melton-Butcherhttps://www.blogger.com/profile/17596532480645510678noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-42878344903502606362011-06-08T10:11:50.320+01:002011-06-08T10:11:50.320+01:00Congratulations on the prize!
I realise I've ...Congratulations on the prize!<br /><br />I realise I've been rather neglectful of your blog recently and I apologise. I read through your Sunday post and this one, and this stood out for me, 'I learnt an important lesson on Sunday which was I need to be more proactive taking painkillers and not see it as some sort of weakness if I need to take medication to help me cope.'<br /><br />I've known what it's like to live with constant pain; I'm sure it was not at the same level as yours, though it would have probably been unbearable for most people. For years I suffered with IBS, and would be in constant pain and discomfort. I was very good at hiding it. I remember one day in particular when for the first time in months I had no symptoms. When they returned the next day I sobbed with frustration and anger that nothing I did seemed to work. As you know, it was only through my own actions - and not the medical professional - that I was able to cure it.<br /><br />Here's the thing - it is your body. It is your brain telling you you are in pain. Not the doctors, nurses, or medical staff. You know what you need to help you cope each day and night. Never, ever be ashamed to take medication or painkillers.Ellie Garratthttps://www.blogger.com/profile/03731071128348213067noreply@blogger.com