tag:blogger.com,1999:blog-7121366373034963667.comments2023-12-21T07:16:44.979+00:00The Myasthenia Kid .....The Myasthenia Kidhttp://www.blogger.com/profile/11584534247370646805noreply@blogger.comBlogger544125tag:blogger.com,1999:blog-7121366373034963667.post-25803234371590726072020-09-13T09:05:32.050+01:002020-09-13T09:05:32.050+01:00Hi Lindsay,
Thank you for taking the time to read...Hi Lindsay,<br /><br />Thank you for taking the time to read my blog and leave a comment. It is always greatly appreciated.<br /><br />I'm so sorry to read that you are having a rotten time of it as well and I have my fingers crossed that you will get to the right levels of HRT hormones very soon. <br /><br />I'm still doing really well on the HRT I did have two minor migraines on Friday ( the day after publication ) . They went with Sumatriptan and were much less than normal which is a huge improvement.<br /><br />Thanks again and good luck<br /><br />Rachel The Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-46562351682156620602020-09-13T05:36:31.197+01:002020-09-13T05:36:31.197+01:00I just wanted to say how much I can relate to this...I just wanted to say how much I can relate to this post, and absolutely agree with you that HRT is your own damn business, and no one else's input should matter.<br /><br />I used to get awful migraines for a few days each month, too. Then I stopped birth control pills in 2015, and my hormones raged out of control and the migraines continued. I was put on HRT about a year later to help with the depression, acne (like even on back and chest), hot flashes, and irritability. It has taken a long time to figure out the right HRT for me, and I'm not even sure I'm 100% there yet, but I'm finally getting close. Some people talk about hormones like they're a minor inconvenience, but for a while they ruined my life. It's not the same for every woman. We each have a different journey dealing with hormones, especially as we age. Each woman should be free to address it in the way that best suits her, without judgment.<br /><br />I'm not in menopause yet, but probably perimenopause, and likely have been for many years (I'm 41). I am so grateful that HRT is even an option because honestly, if it wasn't , I'm afraid of what my life would be like today.<br /><br />I hope you continue to find relief in whatever way possible, including HRT. Lindsayhttp://www.dysautonomiac.comnoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-1613288016999348742019-12-13T10:07:35.472+00:002019-12-13T10:07:35.472+00:00Thank you.
I found it fascinating what people rea...Thank you.<br /><br />I found it fascinating what people read into a photo that captured less than a second of time. <br />I am sat in front of a window on a sunny morning which means my face is in shadow but unless you were sat in my front room at the time it was taken you would never know.<br /><br />I have found over the years only people that really know me can tell when I am "looking" poorly, it is usually my mum and she can tell just by speaking to me over the phone.<br /><br />It is always really difficult, I find it hard to accept compliments anyway. So I just thanked everyone that commented. There is no point getting shitty about it.<br /><br />Thanks for taking the time to read and leave a comment on my blog<br /><br />Rach xThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-73489693942556144482019-12-13T07:53:37.323+00:002019-12-13T07:53:37.323+00:00You look pale but it's not clear that the ligh...You look pale but it's not clear that the lighting of the photo (which is beautiful) didn't do it.<br /><br />And you look pretty.<br /><br />I don't think people should be talking about how you would feel for looking pretty. (And of course looking pretty also doesn't matter if you feel awful).<br /><br />When I went to play Scrabble once, friends said I looked good about 2 hours after I had had pre-syncope. I told them I felt awful. I think they then told me I didn't look so great (just because I had suggested it) and I thanked them...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-71996378714398468272019-12-10T06:45:06.202+00:002019-12-10T06:45:06.202+00:00Hi,
thank you so much for reading my blog and taki...Hi,<br />thank you so much for reading my blog and taking the time to leave a comment.<br /><br />Thank you also for proving that I am not the only one who loves their dogs as much as I do and mourns them passing. This week is tough as it is leading up to the two year anniversary of losing Willow, Mollies daughter and Frankie's sister. Her passing was quick and out of the blue. So it came as a real shock. I don't think we had the time to mourn her properly as we lost some people that were close to us shortly after so 2018 was a bit of a blur ( she passed December 15th 2017 ). It worked out there was 55 weeks between having three dogs and having none, losing Mollie & Frankie within 7 days of each other was awful. Dembe brings us so much joy. He has his own unique character that we still feel like we are getting to know. <br /><br />I am so glad that you have Maggie in your life now. She was obviously destined to be yours after her owner could no longer care for her.<br /><br />It sucks that dogs are only with us for such a short period of time. But they shower us with a lifetime of love in that small period, that we can never forget.<br /><br />Thanks again<br /><br />Rach x The Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-35362992737548292502019-12-10T02:52:02.413+00:002019-12-10T02:52:02.413+00:00I absolutely understand how much you can love your...I absolutely understand how much you can love your dogs. I lost mine almost ten years ago, a goofy Wheaten Terrier named Rufus and because of Work and commuting I didn't have time for another dog being out of the house, sometimes for up to twenty hours out of the day. Rufus had been a gift for my daughter on her twelfth birthday so she was home with him when I wasn't splitting time between her mom's house and mine. When he died she was graduating from college and on her way to grad school in Europe, so my house felt very empty. I still mourn him from time to time. In early March of 2017 I was diagnosed with Myesthenia Gravis (which is the reason I happened upon your blog)and have been unable to return to work since. It was about a month after my 57th. birthday. I can't remember the last time I was sick before that, when I had to go out on disability the company told me that I hadn't taken a sick day in twenty seven years. <br /> I had been working a ton of overtime for almost four years running so I chalked the symptoms up to being exhausted, but I was at work one day and my vision went screwy and my right eye just closed on me. To make a long story short, over the next several months I went from being a work horse no nearly dying. I started IVIG infusions and was prescribed Prednisone, I also had a Thymectomy. The Prednisone triggered what can only be described as the worst case of shingles in history, but I guess they all feel like that when it's you. Then, just as the shingles was healing (I still have the post-therpetic pain), I collapsed with Pulmonary Embolism in both lungs that the ER Doctor thought should have killed me. And all that was just from March to September. By the end of the year it became apparent that I was going to be unable to return to work so I retired, and one day I was having lunch with a friend of mine (a big time animal lover), and she told me about a friend of her's who was looking for a home for his mother's dog. The woman had had a stroke and was diagnosed with Alzheimer's. she couldn't take care of the dog, Maggie, anymore and for about a year, she had been passed from family member to family member and to a few friends as well but for one reason or another no one could keep her. So I went to see her and she came right up to me and looked at me as if to ask for help, so she came home with me and I love her dearly. We spend every day together she is even welcome at the infusion center.<br /> It's a hard thing that we outlive our dogs, I still miss dogs I had as a child; but there are so many that need a loving home. I promise you it gets better and I wish you many happy years with your new little guy. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-62265265098025598472019-07-02T08:34:23.593+01:002019-07-02T08:34:23.593+01:00Hi Lindsay,
Thank your for your lovely comment.
...Hi Lindsay,<br /><br />Thank your for your lovely comment.<br /><br />I have to agree although I am a little biased. I adore him and his cheeky ways.<br /><br />Thanks again<br />Rachel xThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-48252452691268217672019-07-02T04:54:38.604+01:002019-07-02T04:54:38.604+01:00That face!! I just want to smooch all over it. Wha...That face!! I just want to smooch all over it. What a doll.Lindsayhttp://www.dysautonomiac.comnoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-40581557826992877412019-06-09T08:20:37.247+01:002019-06-09T08:20:37.247+01:00Hi Carleen,
I am pleased to hear that you can read...Hi Carleen,<br />I am pleased to hear that you can read it again after I changed the way the mobile app was displaying it. Dembe loves his pool and the hosepipe. He goes crazy for both.<br /><br />Thank you<br />Rach xxThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-47708495463905973702019-06-08T20:03:36.181+01:002019-06-08T20:03:36.181+01:00Hugs💕have enjoyed catching up on your blog. Dembe...Hugs💕have enjoyed catching up on your blog. Dembe is adorable! We are going to get a little pool for our babies to try out. Great idea!Carleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-55086080065566999892019-05-31T10:02:31.606+01:002019-05-31T10:02:31.606+01:00Hi Carleen,
Thanks for letting me know there is a...Hi Carleen,<br /><br />Thanks for letting me know there is an issue with the blog. Are you reading it on your mobile rather than on a laptop? I have just changed the mobile version to show what desk top users get. I didn't realise that they weren't the same. The desk top version has black text in a grey box so you should be able to read it now. If you continue to have problems please let me know.<br /><br />Thanks again and my apologies for you not being able to read it.<br /><br />Rach xxThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-25501431454691148742019-05-31T07:51:36.348+01:002019-05-31T07:51:36.348+01:00Love sweet pics of Dembe🙂 cannot read your entrie...Love sweet pics of Dembe🙂 cannot read your entries though maybe bc of the background trees? Hope you are feeling ok. CarlyCarleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-77652531610279909762019-04-17T07:30:27.770+01:002019-04-17T07:30:27.770+01:00Hi Lindsay,
Thank you.
I seem to have a problem w...Hi Lindsay,<br />Thank you.<br /><br />I seem to have a problem with my notifications and had no clue you had left a comment until today. Thanks for taking the time to write something and for reading my blog.<br /><br />Dembe gets cuter by the day and is now 5 months old. I can't believe how big he is already but he still seems tiny to us.<br /><br />Thanks again<br /><br />Rach xThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-77232332933402965652019-03-30T04:36:02.839+00:002019-03-30T04:36:02.839+00:00oh my gosh, Dembe is so cute!!oh my gosh, Dembe is so cute!!Lindsayhttp://www.dysautonomiac.comnoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-8930553367846886512019-03-27T13:49:27.927+00:002019-03-27T13:49:27.927+00:00Hi Carleen,
I just dropped back to the 30mg I was...Hi Carleen,<br /><br />I just dropped back to the 30mg I was on previously and feel much better and none of the awful side effects. A little of the anxiety has come back but I am in a better place to cope with it. The fog that I was surrounded in seems to have lifted thank goodness.<br /><br />Hope you are doing ok?<br /><br />Rachel xThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-50812333411988720262019-03-26T21:07:42.756+00:002019-03-26T21:07:42.756+00:00Maybe try something else? Wellbutrin was the only ...Maybe try something else? Wellbutrin was the only med that didn't make me apathetic and lose my libido. Dropped weight on it too. Carleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-58677005444487285372019-03-26T21:05:26.124+00:002019-03-26T21:05:26.124+00:00I believe you! Agree all the way. Docs are similar...I believe you! Agree all the way. Docs are similar here in my country. Cover their #$@. PTSD from medical mistreatment is a thing. Hugs💕Carleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-67116245861515658212019-03-26T21:01:41.451+00:002019-03-26T21:01:41.451+00:00Lovely creations! Glad Dembe brings you such Joy!�...Lovely creations! Glad Dembe brings you such Joy!😊Carleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-19971276167174164762019-03-13T02:48:27.121+00:002019-03-13T02:48:27.121+00:00Hey there I am so thrilled I found your web site, ...Hey there I am so thrilled I found your web site, I really found you by mistake, while I was browsing on Google for something else, <br />Nonetheless I am here now and would just <br />like to say kudos for a remarkable post and a all round enjoyable blog (I also love the theme/design),<br />I don’t have time to browse it all at the minute but I have saved it and also added in your RSS feeds, so when I have time I will be <br />back to read much more, Please do keep up the <br />great b.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-51080579119553525092019-02-10T16:29:58.136+00:002019-02-10T16:29:58.136+00:00Hi Carleen,
Thank you so much for your lovely com...Hi Carleen,<br /><br />Thank you so much for your lovely comment, it is always so lovely to hear from you.<br /><br />Thank you, I have been quite busy this week, I have made two more birth announcement cushions and 3 different ones for birthday presents later this year. I am really pleased with how they have turned out.<br /><br />Dembe is having a crazy dog day. He is so full of beans today. He is making us laugh with his antics<br /><br />Hope you are keeping well<br /><br />Love<br />Rach xThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-55447945954008823932019-02-10T15:40:52.305+00:002019-02-10T15:40:52.305+00:00Love the cushion! Glad you are creating beautiful ...Love the cushion! Glad you are creating beautiful goodies again. <br /><br />Dembe is just adorable. 🙂<br /><br />Love your writing and am thankful for your candid sharing. HugsCarleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-18828940457094437622019-02-07T10:40:02.705+00:002019-02-07T10:40:02.705+00:00Hi carleen,
great to hear from you and thank you....Hi carleen,<br /><br />great to hear from you and thank you. Finally starting to feel like myself.<br /><br />I ended up on antibiotics as I had a chest infection and sinusitis. No wonder I felt so awful! I thought I was being a wimp and kept pushing myself to do stuff and wondering why I was collapsing in a heap.<br /><br />Dembe brings us so joy, he is a real little character. We have just got back from the beach, its freezing cold but it blew the cobwebs away. It gets Dembe socialising with other dogs and gets us out of the house.<br /><br />Hope all is well with you<br /><br />Love<br />Rach xThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-28103355330114903582019-02-07T00:46:30.574+00:002019-02-07T00:46:30.574+00:00Hope you feel better soon. Enjoy your sweet new bu...Hope you feel better soon. Enjoy your sweet new buddy. He's adirador😎Carleenhttps://www.blogger.com/profile/00569252948994340296noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-42775532562510868942019-01-28T07:54:16.722+00:002019-01-28T07:54:16.722+00:00Hi Lindsay,
Thank you so much for reading my blog...Hi Lindsay,<br /><br />Thank you so much for reading my blog and leaving a comment.<br /><br />You are right no one should judge you but as we know people do. Thankfully no one has said anything directly to us. I don't think they need to as I am beating myself up more than anyone else could. I think my default setting is guilt.<br /><br />Dembe is settling in well and this Thursday he will be able to go out for his first walk.<br /><br />Thanks again<br /><br />RachelThe Myasthenia Kidhttps://www.blogger.com/profile/11584534247370646805noreply@blogger.comtag:blogger.com,1999:blog-7121366373034963667.post-49370064415473473292019-01-28T05:06:53.240+00:002019-01-28T05:06:53.240+00:00So sorry about your dogs. That must be so hard.
N...So sorry about your dogs. That must be so hard.<br /><br />No one should judge you for getting another dog. We all do what we need to in order to get through the hard times, whether that's getting one dog or five dogs or no dogs. We should all be allowed to do what is right for us. Your puppy is adorable, and it's wonderful to have a recipient for all that love you have to give, but I know it also doesn't lessen the pain of losing your precious pups. Big hugs to you.Lindsayhttp://www.dysautonomiac.comnoreply@blogger.com