Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type.
I've just found a blogger you need to be in contact with, and I've given her a link to your blog also. She has recently been diagnsed with POTS and Ethlers Danlos Syndrome. Rebecca Bradley
Thanks Ellie, I have contacted her. I believe I know her through her posts on the EDS forum. Spooky we were diagnosed on the same day!Have told her to contact me if she wants to.Hugsxxxx
I'm here!! Thank you both. Ellie for finding the link and Rach for getting in touch. I love this post and fully understand it! Oh how long I felt like a hypochondriac!
Unfortunately I haven't just felt like I was a hypochondriac I was accused of it too.12 months ago despite my symptoms being basically the same as they are now I was given a clean bill of health. It was only trawling the internet and finding health forums that I eventually managed to put the pieces of the puzzle together. Even then my old GP didn't believe me so I changed GP's.Rach
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