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1. Had no Internet connection from late friday night until Sunday 11am BST
2. Due to humidity / heat I have had an increase in my MG like symptoms. I have had pretty much constant ptosis, double vision and blurred vision, which is not conducive to using a computer screen. Mestinon will open my eye but it doesn't get rid of the blurry vision or the double vision. Also in these symptoms very weak shaky legs. Its very much like when I first got ill in 2007.
3. Pain not being very well controlled.
Ok so those are the reasons. If there are any massively glaringly obvious mistakes that I have missed in this post its due to my vision being extremely wonky. So apologies ......again.
I have a physio appointment next week on Wednesday......or should I say torture session because its going to hurt. I am so deconditioned anything above and beyond my normal level is going to hurt. Luckily the place I am going to is the pain management clinic and physio department.So might kill two birds with one stone.
As I haven't been on any Internet sites properly for a bit I have a bit of blog reading to do so apologies for not swinging by your posts. Its highly unusual for me to be absent this long. I hope you understand.
Special message for Rachel who writes this crafters Yarn.
You may have noticed an increase on your visitors to your page. This is because Midmomga on Twitter has advertised you as a good MG blog to read. She has signposted your readers to come via me due to my blog being linked to yours......So exciting. So if anyone searches twitter for MG your blog will come up! The message reads as follows..(exactly how it was on twitter)
This week's #Recommend: #Myasthenia Gravis patient blog: http://bit.ly/jhuCR5 "This Crafters Yarn" by Rachel Connected through @kidmorris
Ok this is all I can manage for today. Thank you for visiting after my little absence. Hope to be back in the swing of things soon. Much love xx
2 comments:
Oh Rach, where would we be without the internet? It's such a huge part of most peoples lives today!
The humidity can be dreadful!! I understand the feeling in your legs, they are my biggest problem, they always feel shaky, sometimes much worse than others.
I'm sorry you are in so much pain, I've done a lot of reading about EDS, the pain it causes some people is downright horrible.
Hope your torture session next week helps some!
Thank you for the Twitter info, I must admit I've never been on Twitter!! I know, crazy isn't it! I guess I get here someday.
How is your garden coming along? I hope you'll share some more pictures soon
Rachel
Hi Rachel .. sorry life is not being easy .. most of us feel better with the warmth of the sunshine ... for you - it's challenging.
Now it's 5 days later .. I hope things have settled down ..
Did you enjoy the time with your parents .. just look after yourself as best you can - cheers Hilary
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