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I can't lie, I am struggling at the moment. I am not feeling sorry for myself because I just don't have the energy for it. All I want to do is sleep, sleep and actually feel like I have slept. Instead of sleeping 12 hours and still feeling like I haven't slept.
My joint pain is up through the roof. Nothing is making a dent in it and I have quite a pharmaceutical arsenal to choose from. My hands are stiff and sore all day everyday. Typing is becoming more and more difficult. I am at a loss of what I can do. I generally feel so awful all I want to do is hide and never emerge from under the covers until the pain has gone.
I am too sick to pretend everything is ok like I normally do.
I keep pretending to everyone that I am feeling better than I was the day before. I'm not I am just getting a little more used to feeling this crappy for days on end.
As typing is currently causing me too much pain, this will be my blog post this week.
Much love
Rach x
13 comments:
Hope next week is better for you. I'm lucky, carers type for me. It's dreadful it took so long for you to be diagnosed. Xx
Thank you for reading my blog post and taking the time to comment on it. Every comment I receive is greatly appreciated.
I am doing a little better now. The pain has dropped down a few notches but my fingers are still very stiff. My fingers are usually very bendy as I have Ehlers Danlos Syndrome - hypermobility type so its very weird to have them not move as much.
I hope the police track down the person that maliciously reported you to the DWP. I think it is something that all disabled people in the UK fear now.
Thanks again
Rach xx
Glad you're a little improved today. My daughter has EDS too, aswell as various autoimmune conditions associated. It's very unpleasant for those of you that suffer. Yes, we live in fear now. Please keep on blogging as much as you can..Diverse conditions but with a commonality that we share and can support each other. 👍
My daughter blogs under NurseryRymes on here . Cinn xx
Thanks Cinn.
I will look out for your Daughter's blog is it on Wordpress or Blogger?
I will keep blogging as it is the only thing that keeps me sane. I hate it when illness prevents me from posting. Its my way of expressing myself and being heard. Now I am disabled I feel quite invisible to the rest of society.
Thanks again for your support.
Rach xx
Wordpress, I've re blogged a view of hers, she's not been blogging long either. Satirical take on the world. Xx
Thank you I will check it out xx
https://nurseryrhymenews.wordpress.chttp://youtu.be/p6F8RjO1PhMom/2015/06/12/iain-duncan-smith-work-and-pensions-vileness/
Cinn x
https://nurseryrhymenews.wordpress.chttp://youtu.be/p6F8RjO1PhMom/2015/06/12/iain-duncan-smith-work-and-pensions-vileness/
Cinn x
Unfortunately the link isn't working. Don't worry I will track it down xx
☺️ she's under NurseryRhymenews WordPress
Cinn
I have found it through your blog. I blog on wordpress and blogger so I have followed her blog as well xx
Hi Rachel, thanks . She'll appreciate that . Take care xx
Thanks she'll appreciate that 👍 Take care xx
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