Thursday 19 April 2018

Reviews

I don’t tend to do product reviews and I am always highly suspicious of bloggers
who are always saying how wonderful a new product is, failing to mention they
have been provided the product free of charge in return for a favourable post.


I am also quite hard on products and I am acutely aware of what may work for
me may not work ( or even fail miserably ) for others. However when I do find
a product that works well for me I like to share. Now I just need to make it
clear, I have paid for these products myself and I have not been asked to
provide a review for them. I am just sharing these products with you because
I know many of you who read the blog have the same problems as I do and
they may help you.


The first product is the icloudy pillow made from memory foam. I have included
a link to Amazon as this is where I purchased it from. At £35.99 I am aware
it's not cheap, particularly for those on a limited income. For me it’s been
worth every penny.




I have bought many different neck pillows over the years in an attempt to
stabilise my neck whilst sleeping. Due to EDS (Ehlers Danlos Syndrome)
I have terrible problems with my neck being unstable, a physio once described
me as having an owl neck, as I can twist my head around so far.
I wake up with horrendous headaches, stiff neck and just in an awful
lot pain. I have said to many doctors that a lot of my headache issues
and possibly my leak have been caused by my necks instability.
Unfortunately in the UK this seems to be an area that is completely
neglected by the medical profession when it comes to EDS.
With many EDS patients facing the choice of raising hundreds
of thousands of pounds to have surgery abroad or face a slow agonising death.
Now I am nowhere near that bad thank goodness but a few weeks ago I woke
up in agony. My head pain was so bad I was convinced that my CSF leak had
returned. I couldn’t do anything as the pain was so severe. I took every
painkiller available to me and it just wouldn’t shift. In desperation I took a
diazepam (which I had been prescribed for anxiety) it was the only thing
that worked which thankfully proved to me that it wasn’t my leak coming
back. You have no idea what a relief it was.


Over a few months my neck had become increasingly painful, sleeping
which should be a comfortable and relaxing experience was leaving me
racked in pain. I was already using a memory foam neck pillow but it wasn’t
doing anything for me. The only relief I had found was sleeping with just a
rolled up towel under my neck but due to EDS causing reflux, it was a no no,
as I kept waking up choking on my stomach contents. I also tried lifting the
head end of my bed and sleeping on a rolled up towel placed under my
neck but again...one night was fine but the following night my lower back
and pelvis were extremely painful due to the angle raising the head end
of the bed was placing them in. Out of desperation I searched online for
a different type of neck support pillow. I needed one that supported the
natural curve of the neck but also dropped my head back rather than it all
being on the same level which is completely unnatural. After a good look I
discovered the Icloudy Pillow, which was shaped completely differently to
any pillow I had tried before.






As you can see the centre of the pillow is the lowest point so it allows
for the curve in your neck (my curve is completely reversed). The difference
has been incredible. The first night I thought it was a fluke, my sleep was
totally different and I didn’t wake up in the night with pain radiating from
the back of my head to the centre of my shoulder blades.  The second night
I had a bit of pain from lying so flat, so added one wafer thin pillow on top
of the icloudy pillow to see if that helped and it did. I woke up again pain free.
In fact every day since using this pillow I have woken up without my usual
headache and neck pain.


I still have to be really careful moving during the day, today I have managed
what I call a crick - I am guessing normal people may call it more than that.
So I have pain in the base of my skull and at the top of my shoulder blades.
I can live with that, its no where near as bad as a leak headache. My quality of
sleep has been completely altered by using this pillow. I can see now why it
gets so many good reviews. The good news is that it will also fit in a standard
Oxford pillowcase so no special case is needed for it.


Now as I said I am suspicious of bloggers who gush about products without
making it clear that they have received financial compensation for doing so
or received the product free. I never get free products and wouldn’t feel right
gushing about a product that I think is shite. So if I tell you about a product it
is because it worked for me and it may possibly work for you.


Those of you who follow my blog will know a few weeks ago I took a tumble
in the snow. At the time I wrote about the fact I had hit my head and that my
legs were really sore. Well I obviously had distracting injuries as a few days
later I was noticing that it was very sore to sit down for longer than about 10
minutes (not good when you love to sew and even worse when standing makes
you want to faint). I realised I had damaged my coccyx in the fall. I was quite
plain speaking when I told Mr Myasthenia Kid how it felt “ Like someone has
hit me with a shovel between my arse cheeks” - don’t say I didn’t warn
you ha ha ha! It was very painful and very frustrating as I was only comfortable
lying down but my back hates me lying down.


In desperation again I wondered if there was such a thing as a support
cushion for your coccyx. Again on Amazon I stumbled across the Supportiback
At £29.87 it’s not cheap, but when you can’t sit down without being in a lot
of pain and you can no longer do the thing you are completely addicted to
- sewing, then believe me you’ll pay any price to no longer be in pain. The
great thing is with the cushion is the size, I won’t lie currently I am wide
of hip so need a large cushion, this doesn’t disappoint. I have taken the
photo on my kitchen chair which is a standard Ikea chair.
The gap at the back of the cushion is where you coccyx sits over so no
 pressure is applied.

It’s made of memory foam and has a gel surface to it. It moulds to your body
contours and it has also relieved the pressure I feel on the backs of my legs
when I have been sat for a while. I also like the fact it is breathable so it
doesn’t leave you feeling hot and sweaty when you have been sat on it for
a while. The difference for me was night and day. The cushion also doesn’t
slip and slide so feels completely safe when you are getting up and down.
I only noticed this morning when I took a photo of it that it has a handle
on the side to carry it. I am contemplating buying another one for me to
use in the car, as that is now the only seat that I feel very uncomfortable on.
With the cut out at the back of the cushion there is now no  pressure being
applied on my coccyx which is also allowing the injury to heal much faster now.
I read in a lot of the reviews that people were also using these as cushions in
their wheelchairs and mobility scooters which is another excellent idea.


So no more numb bum or back of my thighs when I have been sitting at my
sewing machine.


I hope you have found my reviews helpful and if you have any questions
about either product please don’t hesitate to get in touch or use the links
in the post so you can read the reviews left by Amazon customers.

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