A hard week health-wise

The last week has been really hard health wise. I haven't been the sickest I have ever been but I have certainly been sicker than I have for a while. There is no "reason" that I can identify for this other than perhaps the decline in my health that I have been waiting for since we lost Mollie and Frankie. Stress, emotional upset and change can all upset my chronic health conditions and it seems everything wanted to bubble to the surface last week. I did just power on through which now I am wondering if that was the right thing because I am having more and more MG like symptoms this week - shortness of breath, limb weakness etc sorry I should have said my idiopathic hemifacial spasm the latest bullshit diagnosis for my Ptosis, totally ignoring all the other issues.

If I am honest there is only one symptom that has me terrified and that is when I will suddenly and for no reason lose the ability to take a deep breath. No matter how hard I try to suck the air in my chest fails to move. I end up taking a series of short breaths to minimise the panic that rises in me. I have an elephant sat on my chest who is refusing to budge and I know that if I went to hospital my breathing would be ignored and I would be labelled with a mental health condition rather than the fact that there is something going on at the neuromuscular junction which has been proved time and time again with the ice-pack test. Apparently for the latest neurologist I have seen for these symptoms back in 2017 I believe, it is just a placebo effect. Words fail me.

Sunday freaked me out a bit as well. I wasn't feeling great when I got up and knew there were a couple of jobs that I had to do, then I could sit around and rest for the remainder of the day. Once those jobs were completed I noticed my legs had become exceptionally heavy, like there were lead weights attached. I could walk but it was very slow and shuffling because lifting my feet was taking a supreme effort. I attempted to climb the stairs but that was impossible. I may as well have been sat at base camp for Mount Everest without oxygen, as those stairs were impossible. After attempting three I came back down on my bum and then wondered how the hell I was going to stand up again. Thank god for Mr Myasthenia Kid being home and with it happening on a Sunday. He could help me to my feet and get me to the sofa, plus organise my medication. 

You see I get to take Mestinon / Pyridostigmine Bromide for my PoTs symptoms. I usually dose as follows 7am 60mg, 11am 30mg, 3pm 30mg or 60mg depending on how I am feeling and then 30mg at 7pm. I have to be careful with Mestinon by body is extremely sensitive to it. Too much and I can be twitching all over but mainly my face and it can trigger terrible stomach cramps. It takes a lot for me to take another 60mg during the day but at both 11am and 3pm I ended up taking the full dose because without it my legs wouldn't work. My legs not working is not a PoTs symptom, it isn't an EDS symptom either. There is no medical explanation for this symptom, other than the fact the medical profession believe its all in my head. Which is why when my breathing gets difficult I panic. This medical condition that appears so much like MG / Neuromuscular junction disease will be ignored and it could end up killing me. I am lucky, my symptoms are mild but I have bouts like this especially when the weather gets warmer where my body fails to cope. I worry one day I will be so ill that the doctors refusal to think outside the box will mean that I will be killed by medical negligence and that is a fucking scary thought.

I mean if there is nothing wrong with my breathing......why have I had home oxygen since 2009? In the current economic climate of ongoing austerity since 2010 why if I don't need support for breathing on occasion why has this precious money wasting resource not been taken from me? Home Oxygen can't be cheap,  I have an oxygen concentrator a machine that pulls oxygen from the air and then feeds it down a nasal cannula at a purer form. In case of power cuts I also have to have a huge oxygen canister in the house, I have to notify the local fire-brigade and I am classed as a vulnerable service user by the people who maintain the power grid. The canister also impacts my home insurance cost. If I didn't need it I would get rid of it, not only are the canister and oxygen concentrator ugly they are taking up valuable space in my small home. So in an age of cuts to all services who is covering their arse by allowing me to keep my home oxygen? 

Home Oxygen won't save me if I end up in a full blown Myasthenic crisis. This is where the muscles around the lungs and the diaphragm become paralysed and can't move so you can't get the air in as when you attempt to breath nothing happens. In this situation you need to be in hospital on C-pap or Bi-pap or in the worst case scenario put into an induced coma whilst they ventilate you - sticking a tube down your throat and breathing for you ( intubation ).  Today as I am writing this the elephant has returned, breathing is hard. I took my mestinon at 7.30am already my right eye is starting to droop, its seems I may have to take my next dose earlier.

The Myasthenic like symptoms are the worst thing I currently deal with and I am lucky they are mild the rest of the time. Last week was like a smorgasbord of every medical condition I have. My PoTs symptoms were crazy - heat induced despite me upping the salt tablets ( to 8 a day ) there  were multiple episodes of pre sycope ( near fainting). I had vertigo luckily I caught that attack very early so I only had to endure the room spinning for an hour but it leaves me tired and feeling out of sorts. I had a migraine on Friday one of the worst I have had in months. It was actually the first migraine I have had since January 14th ( my last one was the Monday after Dembe came home with us). My Tinnitus has been so loud it has been difficult to hear the TV and radio. I have felt constantly exhausted .

Then there was the joint pain and my right shoulder continually fighting to escape it's socket. To be honest I have only scratched the surface of what I have dealt with over the last 7 days. I really don't like to say much most of the time because I don't want to be accused of moaning but if I stay silent about it people think that you aren't as sick as you claim you are. You just can't win, you're an attention seeker if you say something and a liar when you don't. It drives me nuts. I stay silent because to be honest it is easier that way. I don't want Jay aka Mr Myasthenia Kid worrying about me when he is at work, I don't want lots of platitudes on social media. It isn't because I think they are false it makes me feel like I am drawing attention to myself and trying to play the sympathy card and that's just not me. 

It's been really hard this week being a puppy mum, I love Dembe dearly, I wouldn't be without him but it is hard work trying to keep him occupied whilst using as little energy as possible. On the whole he is brilliantly behaved but like it is with kids there are days when he can be a little bugger and whilst amusing, it can be frustrating, especially when you aren't feeling well. He is just a puppy though at a little over 6 months old and over time he will calm down. I guess I was so used to Mollie, Frankie and Willow being older and more sedate this has come as a real shock. Jay does loads, he gets up and does his breakfast, he does all the walking and he comes home everyday for lunch to give me a little break and check I am ok. I take my hat off to those of you who are chronically sick and have children, I don't know how you do it.

It has been a hard week health-wise, I just hope things start to settled down very soon.

It would be you

Yesterday was our 18th Wedding anniversary, we celebrated in style with a planned trip to hospital where I was booked in for a short Synacthen test ( as my cortisol levels were low or rather were in 2015 but my old consultant had never bothered to conduct this test and I had found this test result on going through some old letters) and a caffeine infusion. As this had all been booked in last Thursday by my hospital consultant we had presumed things would go smoothly. How silly we were, nothing ever goes smoothly for us.

The short Synacthen test is supposed to be conducted at around 9am in the morning when your baseline cortisol levels are at their highest. In 2015 I had been tested at 10.15 am just to check out the level. The cortisol level was found to be 107, I have written about this in a previous blog post. Basically my old consultant had said in a letter to my GP that he would run the short Synacthen test.....like a lot of things he said it never came to fruition. He promised to do a lot of things and never actually did, which amongst many things was the reason why I left his service. When I showed my new consultant ( new as in from December 2015) this letter the test was booked in for the following week.

When we arrived at the hospital yesterday immediately we asked about getting the short synathen test started and no one knew anything about it. I had to keep asking for anyone to take any notice. In the end they had to ring my hospital consultant to confirm he wanted this test to be completed. This was not my consultants fault whomever was supposed to have booked this onto the system hadn't. The caffeine infusion was showing but not the shirt synacthen test. There were also issues with the caffeine infusion as the drugs had not been brought up from the pharmacy. So before we even got started the phrase piss up and brewery were already rattling around my head.

you can find info on the test here https://www.netdoctor.co.uk/medicines/liver-kidney-urinary-system/a7597/synacthen-tetracosactide/

A set of obs were done and then they said that they would put a cannula in and send me off for a coffee whilst we waited for the caffeine to arrive and my consultant to confirm he wanted the Synacthen test performed. I had to shoot down the idea of putting a cannula in early, its been done many times before and all that happens is it either blows or the vein collapses and the site can't be used. We then have to go back through the fun of finding a vein that will co-operate. Thankfully after the staff talked  with the duty doctor, I was believed and the attempt at getting a cannula in early was dismissed. 

The time was now 9.50am, we had left the house at 7.20am, our dog sitter had to arrive at our house at 7am. The promise that we would be home by 1pm was starting to fade. The short Synacthen test takes an hour, the caffeine infusion takes two hours. We'd been at the hospital for an hour and were no further on than when we first arrived. Jay wheeled me down to the cafe where the queue was out the doors and there was no spare tables. Jay got us a drink from the newsagents and he got himself some breakfast in the form of a pasty. We got back to the waiting room at 10.30am. At 10.45am I told Jay that if we weren't in the treatment room by 11.30am I was leaving. My head was having a bad CSF leak headache day. Being in a wheelchair means I can't lie down and the chairs in the waiting room all had arm rests so it meant I couldn't lie on those either. I tried to distract myself by doing some embroidery but the pain was making it harder and harder to concentrate. At 11am I asked Jay to ask the nurses if I could have some pain relief, just some paracetamol and oramorph. Normally I would bring my meds with me but for some reason I had forgotten.

At 11.20am I sent Jay into the treatment room to ask the nurses if there had been any progress on the caffeine infusion, I had given up on the synacthen test taking place. We were told it was all ready for me and to come on in. The nurse in charge brought me over some pain relief two paracetamol and codeine. It really pisses me off when hospital staff who despite seeing your prescription list decide that your pain doesn't warrant what you would take at home. I hate the fact that hospital removes all autonomy, I manage my conditions better than any doctor or nurse ever has, yet when I go there they assume they are the experts. I pointed out that should I take the codeine I wouldn't shit for a week and yes I used that language - because I had been sat in my wheelchair for 2 1/2 hours at this point and was in a serious amount of pain not just from my CSF leak but also my hips and spine. The codeine was binned and I got the oramorph I had requested.

I was then informed that they were going to now do the short synacthen test. Looking back now I believe they still didn't have the caffeine from the pharmacy at this point and were doing this test to pacify me after basically doing nothing for the last two hours. You can imagine the shit they would have given me if I had rolled in 2.5 hours late for my appointment yet the same courtesy wasn't extended to me. I am a massive supporter of the NHS, I am terrified at the Tory dream of turning it into an insurance based system but when there are 8 staff stood around chatting - and no it wasn't about patients then you see that something really needs to change. I don't want patients to become consumers or clients but I want them to be treated with the same respect that the doctors / nurses all seem to demand. They don't seem to realise that there is a life for the rest of us outside of the hospital.

The first attempt at a cannula site was a bust, the vein blew . This was the state of it last night, the bruising is much worse this morning but thankfully it doesn't hurt

The second attempt was fine but as soon as the Synacthen was injected I didn't feel right . Sometimes I can feel a bit weird / light headed when blood is being drawn or I am getting an injection. Within a few minutes it usually passes. This however didn't pass, I started to feel sick and dizzy. Then out of nowhere my face started to burn, it felt like it was bright red and was stinging. I said to Jay "is my face red?" he replied " yes it is but it's very hot in here", I tried to let the growing sense of unease go but at the 15 minute mark when I was feeling more and more out of it I asked Jay to get a nurse and let them know I wasn't well. All the sounds in the room had become too loud and I could smell a very strange smell, like cooked liver and over boiled veg. I kept complaining to Jay about it but he couldn't smell it.

After seeing them stood around quite a bit all morning suddenly all hell broke loose. My bed was surrounded by 6 staff including the treatment room sister. My Obs were being done and piriton (IV) was drawn up. My normally low blood pressure that sits at 100/70 -90/60 was now 147/98 unheard of for me. My body temperature was now 37.9 having been recorded at 36.6 at 9.30am. My pulse was irregular at racing at 91bpm. I told the Sister that my blood pressure is never high and was told I was anxious due to having an allergic reaction. I couldn't be bothered to argue as I was very frightened because I just felt so very unwell. Initially the IV piriton helped but after 10 minutes I could feel the reaction starting to come back as my face started burning and I started to feel very ill again.

Jay went and got the nurses attention again and I was given IV steroids. I have never had a reaction so severe that I needed steroids. This had been my worst reaction to date. Within 20 minutes of the IV steroids I was back to normal but then we had to wait around and be observed to ensure that the reaction didn't start up again. I was fully checked over by a dr and at 1.50pm 5 hours after we arrived I left the hospital, with no caffeine infusion. I declined the infusion as I just wanted to go home and the staff were also concerned that although I have had the infusion before after reacting to the synacthen it was more likely I could have another bad reaction.

We finally made it through the front door at 3pm. A few hours after being home I emailed my hospital consultant who told me in all his years of being a doctor I was the first patient he has known to react to the synacthen test and then he said " it would be you". Basically if there is a weird reaction to have I'm your girl. He also backed the decision not to have the caffeine infusion.

I have been left with raised red bumps / rash on my face which always happens after I have an allergic reaction. That will fade over the next two weeks and I will get very dry skin which will peel off as the rash is fading. It's a bit sore from being so dry but its still nowhere near what I went through yesterday.

This morning I am feeling like I have been run over by a bus. My HS has flared up on both sides of my groin so that is extremely painful and my joint pain is through the roof. I will be taking it very easy over the next few days.

Even Weirder

If last week was a weird week I haven’t got a clue what this one should

be called! I had more vertigo, a migraine from hell, so bad that

Mr Myasthenia Kid had to take the day off from work to look after me -

more about that later and I can’t share any of my sewing makes over

the last few days as they are all birthday presents for friends between

23rd June and the end of August. A little frustrating when I am so pleased

with all of them, The good news is that my sewing job list on my phone for

the months of May and June have reduced dramatically!

As I wrote in my last blog post I attended a course last Wednesday regarding

how to use my overlocker. I was so excited about the course and I hate to say

it but it was a real let down. It was everything a teaching session shouldn’t be.

In a previous lifetime (1996-2005) I held the position of Training Manager at my

place of employment. I was responsible for all the training that took place for

the 350 plus staff we employed at the time. Not only that I was also sent to

various other locations throughout the south-west to teach other Training

Managers (they were also sent to work with me to get an understanding

of their role) and to teach staff for new store openings. I loved the job and

I am not afraid to say that I was bloody good at it. It broke my heart when

head office in its wisdom decided to get rid of the role. Training quality

immediately plummeted - in my workplace. I have been sorely tempted over

the last few years to do a freedom of information request to see how many

court cases they have had since removing the Training Manager role.

So with nearly ten years of teaching under my belt, I know that people have

varied learning styles. Some learn by watching something and then having a

go, some people learn by reading a manual and some people learn by a mixture

of those two. Unfortunately the course seemed to be mainly the us the students

sat at our machine with the trainer talking at us. So bored was I that I actually

got my phone out and started to look at Facebook - discreetly. I didn’t want to

be rude but I had to do something to keep myself awake as the stairs getting

up to the classroom had nearly killed me. Oxygen was almost required - this

was not suitable for the disabled sewist. I was in agony at the end of the day.

The course had been billed as getting to know your machine - I’d had mine

since 13th April so rather than being terrified I had dived straight in. It became

clear talking to the other 7 pupils ( excluding my mum, yes 9 people to one

tutor how on earth could all of us see anything when she demonstrated at

a machine?) that they had never even opened the boxes that their overlockers

had come in, that possibly mum and I were too advanced for this course.

I obviously wound the tutor up when after she dramatically cut all 4 threads

on my overlocker and asked me to re-thread it and I had it done in less than

5 minutes. She told me off for using my machine when I was checking that

it was chaining (working properly). She didn’t realise that I had threaded it

and actually knew a little about what I was doing. The course went downhill

from there.

Three people's machines broke during the day and not once did the tutor

offer any support, instead there were sarcastic comments dressed up as

imparting information that certain brands of machines were basically crap

and  It concerned me that someone who claimed to know so much about

brands was unaware that Elna and Janome are the same company. One

lady went downstairs and bought a new machine but still this woman ploughed

on and didn’t recap with the lady what she had missed. The same happened

when my mum's machine broke.

By the end of the day I could barely maintain a civil composure, I was threading

my mums machine to ensure that she had a working machine when we

left the course - thankfully her machine was repaired there and then by the

shop owners - I can’t fault them at all. I love their shop and they have always

been lovely which is why I am not naming the location of the class as I wouldn’t

want to damage their reputation, when this was someone who obviously comes

in and works for them. The teacher was demanding yet again mum and I stand

in front of a machine that we wouldn’t have a clear view of - when both of us

have mobility issues which were obvious due to the mobility aids we were using.

I practically hissed that I was beyond tired as was my mother and having

a working machine before leaving the shop was slightly more important

than looking at the backs of people’s heads. I then let her look at the

back of mine as I got on with threading mum's machine -

something the tutor should have done when she was told mum was

having issues seeing properly due to the light coming in

through the window.

All I can say is thank fuck I didn’t pay full price for that class. I still feel ripped

off knowing I paid £27 for it. I will be honest yes I learned some bits and

pieces but not £27 worth.

Thursday was a complete right off as at 2am I woke up with a migraine, it was

hideous. I couldn’t stop being sick and by the time Jamie found me lying in the

dark at 9am I could barely speak. By 2pm I was starting to come around but

I was just completely drained. However my back would not put up with me

lying in bed any longer so I forced myself downstairs.

I was wiped out by the migraine for a good couple of days but I did get some

sewing done. I managed to make a start on my floating triangle quilt, so the week

wasn’t a complete right off. I have started taking pizotifen again

in the hope that it prevents more migraines in the future or if not

it at least reduces the intensity. I can’t cope with that again nothing stops

the pain or the sickness.

My quilt pieces, this is as far as I have got as the rest of my time has been

taken up making birthday presents,

Now all that is left to do is join them all together
 in the right order!

Weird Week

The last week has been really revolting on the vertigo front. The air pressure

due to thunderstorms developing ( we were really lucky and avoided them

but it was so hot and sticky!) made my ears misbehave leaving me with a

couple of days where I felt like I was constantly spinning. Despite all that

I have still managed to get some sewing done and even give a lesson to

a dear friend of mine.

I am having to write this post uber early (Sunday evening) as on Wednesday,

which is usually blog post writing day, I am on a course to learn how to use

my over-locker. I am already starting to panic that a day learning on a course

is probably going to be too much for me, probably? Who am I kidding?

This will floor me especially when my health isn’t great due to this ear problem.

I have had to grab whatever moments I can to do sewing this week as quite

a lot of the time I just haven’t been able to. Thursday I had to quickly prepare

fabric ready to teach my friend Imogen some basics on the sewing machine.

I decided for her first lesson I would have her make an envelope back cushion

cover. I decided that having her sew straight lines on calico would probably

drive her around the twist. Imogen is naturally creative and she thinks like

a sewist. I decided I would cut out all the fabric out for her and overlock all

the edges. All Imogen would then have to do is sew some straight lines and

she would come away with a finished item. I finished all the prep work and

then ended up going to bed as the vertigo became so bad I couldn’t walk in

a straight line.

On Friday Imogen came for her lesson and our bi weekly catch up. I got her

to practice rectangles to begin with on some calico as she would need to

know how to pivot the material keeping the needle down. She did really well

so I let her loose on  the material - pink with unicorns. She did a fabulous job

and I tried very hard not to be constantly leaning over her by playing on my

phone. She was so surprised when she had finished sewing it and genuinely

pleased with herself. She did a fantastic job. Although she will probably kill me

for posting this photo!

I was exhausted on Friday night and was asleep before 7.30pm. I also managed
to forget to take my evening meds which meant I went into withdrawal, thankfully
it wasn’t as bad as it was last time when I wrote about it here
https://wp.me/p4zBAs-m6  but it left me feeling pretty off colour all of
Saturday. However I still managed to get the rest of my fabric cut for
my Kaffe Fasset / Free Spirit fabric quilt.

Today (Sunday) I have finished my wall hanging that has been waiting to

be completed since it arrived in April. During the week I quilted it.

This left the scrappy binding to make and then attach both tasks completely

new to me. Thankfully there are lots of videos on Youtube showing you how

to make scrappy binding - this is where you make your binding from scraps.

Thank goodness my Creative Grids Stripology ruler arrived during the week,

making cutting strips of fabric an absolute doddle.

I then sewed by machine the binding onto the front, which included

mitred corners - proper mitred corners not the bodge job I have done

previously. Then once the binding was sewn onto the front I pulled it over

the edge onto the back and using clips held it in place whilst I hand sewed

the  binding to the back of the quilt.

The hand sewing of the binding onto the back of the quilt didn’t take much

time at all. I made sure the stitches were really small so they are barely

noticeable, it’s the neatest any of my quilts have been on the back. Finally

the wall hanging has been completed, we now need to decide how we are

going to hang it on the wall.

It’s been a really weird week with my ears playing up, forgetting my tablets

and ensuring that I have enough energy to make it through Wednesdays

(6th June) course which is also my 10 month anniversary of giving up smoking,

Thursday 7th June it will be 8 months since I started sewing, since then I have

bought a further two sewing machines and an overlocker!

Tuesday evening and the wall hanging is in situ!

Jamie made a new video yesterday

Eustachian Tube Dysfunction

Just when you think you are managing to cope with everything that has been thrown at you health-wise, life throws you yet another curve ball.

For nearly two weeks I have been suffering with increasingly debilitating bouts of dizziness. Initially I believed this to be low blood pressure, as when measured it has been on the low side but nothing strikingly different from normal. 

Last Thursday it ramped up a gear which was excellent timing, (isn't it always?) as I had a hospital appointment with my consultant. Half way through chatting to the stand in (my consultant was on annual leave) I ended up having to put my head between my knees. It was so severe that the dizziness left me unable to speak for 30 seconds and believe me that is a tough thing to do. The stand in was concerned and offered me a glass of water. I declined because the way my stomach was feeling I knew it would induce vomiting that would be unable to stop. They then took my pulse and blood pressure. In the following few minutes they suggested that I needed to come into hospital.....next week. I declined.

You may think I am mad for declining but my reasons behind it were firstly I have been declining in health for over a year and have been left to get on with it. Plus I was feeling so poorly at that moment in time the only thing I wanted was my own bed, darkness and not to be subjected to countless examinations. Yes I was sick but regular readers are aware of my love of hospitals and the rules for calling an ambulance - unconsciousness or if I ask for it. I didn't feel sick enough for a hospital stay. There were also economic reasons for not wanting to be admitted. Contrary to popular belief in the UK those of us unlucky enough to find ourselves in a position where we can't work, are not living a life of luxury. To be in hospital for a week meant my husband taking a week off work unpaid. That is money that we can not do without. He is out of holiday pay and there is a great deal going on in the business he works for. He doesn't need to be attracting the negative attention which caring for his disabled wife would most certainly draw.

The registrar and I agreed on a date in April for my admittance however that all depends on whether the hospital is on black alert. Black alert means there are no bed and only medical emergencies are being admitted. Unless its life or death you aren't coming in. Due to cancellations of operations that I am aware of, I would hazard a guess the place is close to a black alert again. With this being booked in advance my husband can book paid leave and we can put in place the support we need.

After the hospital appointment I slept for close to 24 hours, something I never do. I am always tired after appointments but I rarely sleep. When I woke up I suddenly realised what was causing the dizziness. It wasn't my blood pressure but my ears. My Eustachian Tube dysfunction was back for the first time since 2012. The familiar feeling of pressure in both ears, tinnitus and dizziness was back. Until the Saturday morning I had no feeling of pressure in my ears, so I had been barking up the wrong tree for the cause of my symptoms. No wonder increasing my salt tablets and steroids had done nothing to alleviate the spins.

Knowing what is causing the issue always reassures me. I dosed myself up on travel sickness tablets and took some over the counter steroid nasal spray to try to reopen my Eustachian tubes. The tubes are connected to your sinuses, so although my sinuses weren't feeling blocked somewhere between my nose and ears they had become inflamed causing them to swell so much they collapse shut. When looking inside the ear a doctor can see that the ear drum is inverted, which caused by the pressure of the tubes swelling shut. Obviously I can't see this but I can feel it. The feeling closely resembles the pressure when taking off / landing in an aeroplane or when travelling in the car up a steep hill. Your ears feel like they are on the verge of popping but never do.

By Monday I had to admit that the dizziness was getting worse. It was making me nauseous and I was unable to sit upright for more than a few minutes at a time. The Dr prescribed me some stronger steroid nasal spray and some anti sickness medication. Unfortunately the anti sickness medication although wonderfully effective didn't agree with me. Diarrhoea and dizziness do not go well together.

This bout of inner ear problems is the worst I have ever suffered. It has been so debilitating I have been stuck in bed for close to a week. I am as white as a sheet, can barely walk as my balance is so bad and I just feel absolutely awful. Nothing other than lying completely still stops the dizziness. Sometimes the room spins violently other times the dizziness is internal. I have been so ill my husband told me he was staying at home to look after me. Every time that he has stayed at home to look after me I have had to ask. This time he took one look at me and told me, this was not up for discussion.

I have barely been able to use the computer, something about the screen seems to set the dizziness off so this post has been written over several days a sentence at a time. Hence why this post is a lot shorter than normal.

The good news is that this will go away, the bad news is it could be weeks or months until it is completely resolved. If it doesn't resolve I may need grommets to try to keep the tubes open. Wish me luck!